“Truthfully, I was nervous about the appointment to begin with and I am saddened that my apprehensions were validated during our visit”
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After a particularity hard doctor appointment, I felt upset and angry and needed to put it somewhere. productive. It showed up as these words, my anthem for now.
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When will you believe that life with her is amazing?
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The messaging we give to each other is to buck up - it was hard for me, now it’s hard for you.
Around and around it goes.
Photo by Roberta McLean Photography
This is not forced, these are not words I say because I have to...
THIS the truth about the diagnosis - she is incredible.
Trigger warning - because someone might see this and cry. Someone might assume it was easy for me.
And it wasn’t.
Each day Kenzie asks for the same music video. Every. Single. Day. Repetition works for her.
Why? Because familiar feels good. It feels safe.
I don’t need to defend myself because I don’t believe I did anything wrong. But. I do want to explain the ethos behind what I’m doing here in the space, so that if ANYONE who feels like my ethics behind my advocacy are wrong - can just move the F along.
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It made me a little sad. But mostly, it made me f-ing exhausted. Because the advocating will never stop, not if I want to make + see changes for my daughter.
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When we learned Kenzie had Down syndrome I assumed we were being given a life sentence of hardship and struggle. Not in a million years did I think I would be THANKFUL to have my eyes opened to a new kind of wonderful.
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In honor of World Down Syndrome Day - March 21 3 / /21
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