“Truthfully, I was nervous about the appointment to begin with and I am saddened that my apprehensions were validated during our visit”
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When will you believe that life with her is amazing?
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Guest Writer Lisa Wallace
What I didn’t know when we first started on this journey that I now know is that she has been a far greater teacher to me than I have been to her.
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Written by Guest Blogger, Adelle Purdham
Oreo saw who I was before our daughter Elyse came into my life, and she saw the person I grew into afterwards. Oreo oversaw my education of what it means to be human and to embrace the human spirit in all its uniqueness. She watched me grow as a person and become the mother of three lively girls, an advocate and a writer.
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Photo by Roberta McLean Photography
This is not forced, these are not words I say because I have to...
THIS the truth about the diagnosis - she is incredible.
Photo by Jayme Lang
I made all the arguments with myself , including “she might surprise us!” And then I looked from other side, and the only one that mattered was… “she might not take all our attention from Wally…"
It seemed like all of our ability to battle was used up... but we were wrong.
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Each day Kenzie asks for the same music video. Every. Single. Day. Repetition works for her.
Why? Because familiar feels good. It feels safe.
It made me a little sad. But mostly, it made me f-ing exhausted. Because the advocating will never stop, not if I want to make + see changes for my daughter.
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When we learned Kenzie had Down syndrome I assumed we were being given a life sentence of hardship and struggle. Not in a million years did I think I would be THANKFUL to have my eyes opened to a new kind of wonderful.
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In honor of World Down Syndrome Day - March 21 3 / /21
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